Wednesday, April 30, 2014

My mom's article on Myeloma Crowd: A view of myeloma from a caregiver's perspective

A view of myeloma from a caregiver’s perspective

A view of myeloma from a caregiver’s perspective

by Jackie Smith
 
January 6, 2012 was a day that changed our family’s lives,  especially the life of our 43 -year-old daughter, as  she was diagnosed with  myeloma.   Her marriage collapsed at the same time, which made the whole situation extremely sad and demanding.

Since she could not count on her husband’s support, my husband and I decided to move her and her two daughters from San  Diego, California  to our home in Utah. Huntsman Cancer Institute at the University of Utah is a very reputable  institution with great history in the treatment of this disease.   Their protocol for many myeloma patients is called the “tandem treatment” which is two stem-cell  transplants.  It was an arduous process which required patience and hope.    As a mother, the pain that I experienced to see my beautiful, energetic daughter fight for her life  had to quickly give way to a strong and effective care giver.

We went through different stages,  all difficult.  All required a lot of  prayer, good  doctors, medication and luck.  For ten days we moved to a Huntsman-operated apartment (a “clean” apartment) close to the facility.  While my daughter went through her transplant,  I remained with  her to make sure  that the food she ate,  every activity she got involved in, everything she touched did  not pose a risk to her health. I also managed her many medications, which is not an easy task.

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