My myeloma side effects and Obamacare

 

Typically, my most fatigue days are Sunday and Monday because those are the days that I'm coming off of the Dex that I take on Fridays. Last Monday, despite feeling incredibly fatigued, I went to yoga. I had to sit through probably half of the standing yoga poses. I thought I was going to pass out. Everything turned dark and my head started spinning. So I got comfy on my mat and meditated until we got to the floor poses.

But I never know about fatigue. Sometimes I get fatigue on other days, and sometimes I don't get fatigue at all. And that's what is frustrating about managing side effects. I just don't know what my side effects will be or when I'll get them. Case in point...

I caught another winter cold. I think my immune system is doing quite well, especially considering that I take immune-suppressing drugs every day. That said, I get one cold after the next. For the most part, my immune system kicks in and it's just a cold. And that's what this one is.

But despite the fact that I have a cold, this past Sunday, I felt terrific. And Monday morning was a great day, too. So I went to yoga and it felt great. No dizziness or anything. I did every pose (though my balance was way off). Go figure. I would have thought I'd feel horrible Sunday, Monday and today but not at all. I'm coughing and sneezing and congested, but all else is great.

...Except, I was sitting at a stoplight and my heart started pounding. It felt like a huge panic attack except I had no panic. It was bizarre. It went away after a few seconds.

I have to say, it is really strange when you realize that your body can, and will, fail you. Usually (hopefully) most of us will experience that when we get older. I experienced this much younger than I would have liked. It is scary and sad and, well, I feel so not in control. It's all in God's hands. All I can do is live today as if this is all I've got.

I am now using my Obamacare health insurance. I'll blog about that very soon. I am happy with it, I think, but there is so much to discuss about healthcare. I called the Mia Love for Congress campaign office and they promised to get me a one-on-one with Mia Love herself soon. I want to talk to her about a whole host of things and share with her my story. I can't wait to hear what she has to say and to have a very robust dialog with her. She will almost certainly win a seat in Congress and I'm a fan. Strong women are my heroes.